People with many supports

Introduction
Document

This information is about the mental health of people with many support needs.

 

It has information on

A woman in a wheelchair with a speech bubble saying I need. Behind her is a wheel chair ramp, Easy Read document and a timer.
  • Key points for people with many supports
Worried person
  • Worries you might have when getting help for your mental health and what you can do
Person providing support
  • Services and supports
Key points for people with many supports
A woman in a wheelchair with a speech bubble saying I need. Behind her is a wheel chair ramp, Easy Read document and a timer.

People with intellectual disability can have many support needs.

 

Support needs means you need support with different things in your life.

 

Support needs are sometimes called complex needs.

List of needs

You might need a lot of support with

  • Your disability

 

  • Health issues you have

 

  • Your mental health
A woman with two thought bubbles floating above her head.

It can be hard to find support when you have many support needs.

Centre is open

You might need to get support from different services.

People waiting

You might have to wait until you get support from the services.

On time

You might have to wait a long time to get all the help you need.

Person providing support

You can get many services and supports through the NDIS.

ndis logo

NDIS is short for National Disability Insurance Scheme.

 

Your NDIS plan says what supports you need.

Money

Sometimes you need to use services that cost a lot of money.

 

For some services the NDIS pays.

 

For some services you need to pay yourself.

A group of six people. All are smiling.  In the front on the left is a man in suit with his left hand raised in a wave. Behind him is two women. The older woman is hugging the younger woman from behind. Next to them on the right is a man and young man, with their arms around each others shoulders. IN front of them is a woman in suit holding a black folder in her hands in front of her body.

People with many support needs often need to see different health and disability workers.

Working together

It is good if all these people work together.

 

This will help you get the best support for your needs.

Person working on a computer

For more information about how they can work together go to https://www.idmhconnect.health/
working-your-team/ER

Confused person

Some health workers you go to might not have worked with people with intellectual disability before.

Person looking upset while talking to a health worker on the phone

They might not know how to support you.

Not listening to someone who is talking

Sometimes this happens because the health worker

 

  • Does not know the person well
Communication aid
  • Might not know how you tell others what you think
Person working on a computer

For more information about accessing using different services and supports you might need go to https://www.idmhconnect.health/i-am-person-ID/services-mental-health

Worries you might have when getting help for your mental health and what you can do
Worried person

Below are some worries you might have when you try to get support for your mental health. 

Idea

We have some ideas for what you can do.

 

 

Confused person

You might worry that health workers think your mental health problems are because of your intellectual disability

Supporting person with mental illness

This is what you can do.

 

A mental health problem is when your feelings start to worry you

Two people communicating with each other

You should let the health worker know that you feel different to how you used to feel.

Two people sharing information

You can ask your doctor or someone you trust to share information about your health.

Talking to someone you trust

There are many people you might trust.

 

For more information about who you might trust go to

https://www.idmhconnect.health/
someone-trust

Two people talking about a file

You might use a folder to share your information.

The image is crossed. Under the cross a person holding and pointing to a piece of paper. They are talking to another person and handing the paper to them.

You do not have to share all information about your health.

Happy person

Only share what you feel comfortable with.

Seeing a health worker

Sharing your information can help health workers to understand what is going on with you.

 

For more information on types of information you can share go to https://idmhconnect.health/assessment/ER

Speaking up

If you are worried you can also advocate for yourself.

 

Someone you trust can advocate for you too.

Advocate talking to two people

To advocate are things you or someone else can do so your rights and needs are met.

Rights are rules about how everybody should be treated fairly.

 

A right is something everyone has.

Talking to someone you trust

There are many people you might trust.

 

For more information about who you might trust go to https://www.idmhconnect.health/
someone-trust

Three people pictured. One person  is on a computer behind a grey screen. On the other side of the screen are the other two people. One of these people is sitting in a wheel chair and the other is standing up slightly facing the person in the wheelchair.

Someone you trust can come with you when you see a health worker about your mental health.

 

They can tell the health worker that you are different to normal.

Person working on a computer

For more information about how you can advocate for yourself or find an advocate go to https://www.idmhconnect.health/about-advocacy/ER

 

 

Person confused

You might not know how to communicate to health workers about what is wrong

 

This is what you can do.

Communication

To communicate is how you understand and share your feelings or information.

 

You can let the health workers know how you tell other people what you think.

Communication aid

You might

  • Talk to them

 

  • Point at things

 

  • Write down what you want to say
Talking to someone you trust

You or someone you trust should also tell your health workers how they best communicate to you.

Folders

You can have a folder with all your health and mental health information.

 

You can bring this folder when you meet your health workers.

Health worker giving information

Health workers can look at your folder to learn more about you.

Person reading

Below are some health folders you can use or make your own.

Person using a computer

 

 

Seeing a health worker

You might not know what is wrong with you.

 

You can ask your doctor to do a big health check.

Working together

You can also ask the health worker to talk to your doctor or other health workers you see.

 

They can work together to find out what support you need.

Person working on a computer

For more information on how your health workers can work together go to

https://www.idmhconnect.health/working-your-team/ER

 

 

Confused person

Your health worker does not know how to help or how to work with you

 

This is what you can do.

Doctor on the phone

You can ask your health worker to get advice from a specialist service.

Health worker

Specialists are people who know a lot about intellectual disability.

Supporting person with mental illness

Specialist services can work together with your health worker to find out

  • What is wrong with you

 

  • How to help you
Person working on a computer

For more information about Specialist services go to https://www.idmhconnect.health/
mental-health-services-services/ER

 

 

No support

You might not get the supports you need because the NDIS is hard to understand

 

This is what you can do.

Care co-ordinator

You can ask someone you trust to help you get a specialist support coordinator.

 

A specialist support coordinator is someone who helps people with complex needs get the right supports.

Seeing a health worker

You can discuss this with your doctor or health worker.

 

They might be able to talk to the NDIS for you.

Speaking up

You can also advocate for yourself or ask someone you trust to advocate for you.

Person working on a computer

For more information about advocacy go to https://www.idmhconnect.health/
about-advocacy/ER

A person complaining to someone else

You can make a complaint if you are not happy with the NDIS.

 

A complaint is when you tell someone you are not happy with something

ndis logo

You can make a complaint with the NDIS Quality and Safeguards Commission.

Person using the internet

To make a complaint

  • Call 1800 035 544

 

Services and supports
Person providing support

Below is a list of services and supports to support people with many supports.

Health worker

Specialist Intellectual Disability Health Teams know how to work with people with intellectual disability.

 

They can work with your doctor or health workers to help support you

Doctor on the phone

The Statewide Intellectual Disability Mental Health Hubs know how to work with people with intellectual disability.

 

They can work with your doctor to help support you.

Two people sharing information

You can let your doctor know about the Hubs.

Health worker

The Complex Care Service can work to support your health problems.

 

For more information go to https://cds.org.au/clinical-services/our-clinical-services/complex-care-service/ 

Person reading

The Admission2Discharge Together Folder can keep together your health information.

 

For more information about the folder go to http://a2d.healthcare/

Council for Intellectual Disability logo

The Council for Intellectual Disability has a My Health Matters folder.

 

For more information about the folder go to https://cid.org.au/resource/my-health-matters-folder/

Screen capture of the Wordlist on the Intellectual Disability Mental Health Connect website.

There are some tricky words on this Easy Read page.

 

For more information about these words go to

https://www.idmhconnect.health/word-list